Christina Cranfill

hi this is christina cranfill i've been on carnatine since 1983 or 84 it's what has kept me alive it helps me with my medical condition well me and mom are visiting my grandma in indiana we went to kroger to pick up my carnitine but they only had half of the order the pharmacist said the cuponey that makes it is slowing production and might eventualy stop making it because their not making enough money on it to make it the goverment used to give them a grant to make orphen drugs thats what my carnatine falls under but the govermeant took that grant away their is something that needs to be known their was someone with mma i'm not the only one with it any way this person quit taking carnitine and died because that person quit takeing it. mom said i was realy sick before carnitine but when carnitine came out i got better i know you can find carnitine pills know but the doctor says it's not pure carnitine. i have methylmalonic academia it's a severe disorder of amino acid metabolism that can result in vomiting, lethargy, acidosis, hyperammonemia, hypoglycemia, coma, and death if not controlled inother words i constantly have acid insinde my body because of my mma which keeps me from having kids cause the acid inside me would kill any kid i had the carnitine controls my acid levels and my diet of fruit and vegetables with out carnitine my acid levels will get out of wack and i will die i'm not the only one with this there are thousands with organic acidemia which mma falls under that catagory. i mean if there was some way to let the goverment know about the urgent need for carnitine what a life saver it's been to me and thousands of others and that by taking away the grant from makers of orphan drugs their codemeing us to death.

I'm not on facebook mom afraid for me to be on it i don't twitter ethier email is all i do

Christina Cranfill

hi this is christina cranfill i talked to my doctor turnes out it is only the generic carnatine that i get at the pharmacy that might not be making it anymore the original maker of carnatine will still be making it.

Christina Cranfill

my grandma ruth has mds pre lukimia she is getting shots to build up her blood can you belive the doc won't even consider a bone marow transplant for her just cause she 80 something years old and she dosen't even act her age just have to hope the shots work.

Christina Cranfill

Well my cousin got into a accadent on his 4 wheeler idiot did not where a helmet they put him into a med induced coma to drain fluids off the brain he's responding by opening his eyes and wiggeling toes i don't know much else yet.

Bryana Lovell (Watson)

Christina Cranfill

hi my cousin is a little better now good enough to drive up here so his daughter could go to disneys princess and heros on ice with me his sister, his mom, and his 2 neices i don't know if the doctors said it was ok for him to drive from where he's at to indiana though but he is stubborn.

Christina Cranfill

how was everyones winter we lost power and had to seperate my aunt, uncle and cousin came to pick us up there wasn,t enough room for my mom in my aunt and uncles  car so she went to stay with my cousin we were there for 3 days when we got back to grandmas mom had lost 10 pounds evedently my cousins place was unsanitary which i never even noticed when ever i was over their for my little cousins birthday partys but my  cousin is an animal hordder so i guess i can see how it would get realy dirty their.

Christina Cranfill

well we almost lost my grandma all of us had a cold early febuaray grandma got it worst i don't know how long she was in the hospital she was transfered to rehab and is now back home april 4th she is still a little wobbly but she is going to be having a home nurse and home rehab. see we had black mold here in grandmas house my aunt and uncle have been working around the clock to fix up grandmas house and get rid of the mold the bathroom is the only place that has black mold now and my uncle is waiting until a freind of his can get down here to fix the bathroom. oh and thier is dog flu going around so any one who has a dog check on a vacination for them. they said that 5 dogs have already died from it and that chicago is the worst case of it.

Meagan Powell

Your family is in my prayers Christina!

Christina Cranfill

thanks megan grandma is doing ok still wobbly sometimes she is going to get a sleep study monday so she can get a machine to take the carbonminoxide out of her lungs since she dosen't breath deep enough at night to get it out she has copd and this neighboorhood is filthy a saw mill that is closed but the saw dust is still their in piles and not covered up and a trucking company right behind her house plus a supposed recycling place behind that some times their is an awful smell in the air like burnt ruber not to mention 2 houses down their is a nut that burns stinky stuff like oil rags or treated wood supposedly to keep his dogs warm even when it is not very cold out.

Christina Cranfill

well grandma got her machine to take the carbonmanoxide out of her lungs and mom got a sleep study too she has sleep acne because she gained her weight back she dosen't have the machine for it yet.

Christina Cranfill

well i guess afficial i'm living in indiana now been here for to long to call it visiting.

Christina Cranfill

my grandma finaly got her some hearing aids now i'm just waiting on mom to get her hearing aids.

Heather Wheeler (Nixon)

Christina I'm so glad to hear about your grandma Ruth! How are you doing? 

Christina Cranfill

i'm doing fine  heather we got a new air conditioner and furnace and because grandma is a horder and our her house was a mess their was a lot of stuff in the kitchen chair and she was refilling the ice trays and the chair fell on her it hit the back of leg and it left a sore on her leg about the size of a tennis ball that my mom has been doctoring it is getting better knitting back.

Christina Cranfill

i need a copy of my high school education to get help with my medical insurence but i don't know how to go about it?

Christina Cranfill

hi never mind my mom just talked to the people that are supposed to help with my medicare i just need to provide them other stuff.

Angela Blount (Tate)

Hi Cristina! I hope you're doing well. Are you still in Indiana? 

Christina Cranfill

hi angela i'm still in indiana we had a scare back in 2014 or 2015 i'm not sure wich i just know that one night in feburary a week before valentines day all 3 of us were sick my grandma had it worst and she had to go to the hospital she later ended up in rehab after we were well enough to visit her she was in rehab we found out that we had almost lost her but thankfully we didn't she came home close to easter. since then she has been on a machine to take co2 out of her because of what she has she can't get out all the co2 on her own. she had to have a shot to her leg because she has been having trouble walking and their is no way to make her house handicap capacity because her house is small were talking cracker box small. one example the tube is only an inch apart or maybe cm apart like i said small. my mom got her eyes fixed or at least one fixed yesterday she had double vision and she is the only driver in our house. since i have not had drivers ed yet and still don't have a drivers license mom says i have desion making trouble because of my mma and no it is not that wresteling thing my mma came before that wresteling thing mma stands for methylmalonic acdemia it means i can't have to much portein alot of kids with mma end up blind, in wheel chair or deaf their was one who had water on the brain with mma i don't know the proper medical term for water on the brain but that was the translation alot of kids with mma have fedding tubes as well my freind has not only mma but something else to mitocondrea i don't know if i spelled that right or not but i was lucky the only thing the mma damaged was my nose the only thing i can smell is bad stuff and real strong perfume. in 1980 their was only 10 mma kids that survived when i was born.

Christina Cranfill

well we lost prancer march 12 this year he was 14 he had a tumor that filled his belly so he could not eat their was nothing that could be done about it i'm trying to talk mom into a bird a parakeet we had one while we had prancer but it died before prancer the parakeet was called ducky because he quaked like a duck had a broken wing that mindid wrong so he would get back to his cage by climing a cord to his cage well while we were in texas before ducky started living with my grandma i trained prancer not to tuch ducky well prancer had his own cage that his food and water was in prancer was in his cage eating when ducky decided the he wanted a drink out of prancers water bowl. prancer wanted out so he just jumped over ducky.

here is ducky in the christmas tree.

Christina Cranfill

well i have vertigo using excerises to treat it.

Christina Cranfill

hi did anyone here about trumps former lawer pleading quilty to his crimes? trump talks like a mob boss he made fun of people with medical conditions in his 2016 rallys he incourges violence at his rallys. when that charlotees ville happened he basicaly stuid up for those sick kkk idiots. he is a sexist pig who said he could grab us women where ever he wanted to grab us he was caught on camera saying it in 2016 plus rusha helped him win the election by messing with our election. he is all buddie buddie with the russia leader puding trump needs to be kicked out on his lying butt. we just need someone to stand up to trump.

Christina Cranfill

if anyone here does not like trump check out need to impeach website.

Christina Cranfill

on youtube their is a video of the House Judiciary Hearing on mullers report for impeaching trump. trump recently on tv said that if any forigen contry had information on his opponet in the 2020 election he would listen to it and not report it to the fbi which is illegal the chairman even said it is illegal for trump to do that or for anyone runing in the election to gain information from any contry on ones opponet. trumps speaker sarah something just quit after not attending 94 days of white house breifing and lying to us. can we just say that trump is nixon the sequal only worse. and their is also a video on you tube on the House Intelligence Hearing which would also be educational to watch also might be a good idea to whatch the tricky dick series and see the stuff that nixon did is basicaly the same as what trump is doing now.

Christina Cranfill

oh if anyone is goning to be driving trough indiana on the way to the next high school reunion please let me know my email address is lilysgirl1980@hotmail.com